ngly1.org

NGLY1.org - N-Glycanase Deficiency - NGLY1

Research, Awareness and Support for N-glycanase NGLY1 deficiency. Science for understanding, treating and curing NGLY1. NGLY1.org also provides diagnostic resources, library, patient registry, biobanks, support information, conferences, and more.
history traffic contact

OVERVIEW

This domain ngly1.org currently has an average traffic classification of zero (the lower the more traffic). We have researched three pages within the site ngly1.org and found thirty-four websites associating themselves with ngly1.org. There is one contacts and locations for ngly1.org to help you contact them. There is five public media sites retained by this website. This domain ngly1.org has been on the internet for six hundred and four weeks, seventeen hours, six minutes, and forty-three seconds.
Pages Analyzed
3
Links to this site
34
Contacts
1
Locations
1
Social Links
5
Online Since
Sep 2012

NGLY1.ORG RANKINGS

This domain ngly1.org has seen variant levels of traffic for the duration of the year.
Traffic for ngly1.org

Date Range

1 week
1 month
3 months
This Year
Last Year
All time
Traffic ranking (by month) for ngly1.org

Date Range

All time
This Year
Last Year
Traffic ranking by day of the week for ngly1.org

Date Range

All time
This Year
Last Year
Last Month

NGLY1.ORG HISTORY

This domain ngly1.org was registered on September 28, 2012. As of today, it is six hundred and four weeks, seventeen hours, six minutes, and forty-three seconds young.
REGISTERED
September
2012

PERIOD OF EXISTANCE

11
YEARS
7
MONTHS
1
DAYS

LINKS TO BUSINESS

Cortical Chauvinism A site discussing autism related issues

A site discussing autism related issues. Ehlers Danlos Syndrome and autism. Several years ago, I postulated that autism was a neuronal migrational disorder. One way to test the significance of the hypothesis was to examine its predictive powers.

HOPE FOR KATHERINE BELLE Awareness for NUBPL

A special thank you to The Pennsylvania Gazette for the feature cover story. Katherine Belle, age 6. This experience is hard in man.

The FoG Foundation Glycosylation - Home

Saint John, New Brunswick July 2015. Saint John Regional Hospital Foundation.

MLD Foundation Blog - Musings about MLD and rare disease policyMLD Foundation Blog Musings about MLD and rare disease policy

Musings about MLD and rare disease policy. Registration for our 2105 MLD Family Conference. In Newark Delaware is underway and closes in just a couple of weeks. Many of your MLD Family will be there. To meet, share, and socialize with. If you need some help.

WHAT DOES NGLY1.ORG LOOK LIKE?

Desktop Screenshot of ngly1.org Mobile Screenshot of ngly1.org Tablet Screenshot of ngly1.org

CONTACTS

Matthew Might

Matthew Might

1472 E Federal Heights Dr

Salt Lake City, Utah, 84103

US

1.4043763204
matt-domainmonger@might.net

NGLY1.ORG HOST

We discovered that a single root page on ngly1.org took eight hundred and thirteen milliseconds to come up. Our web crawlers observed a SSL certificate, so in conclusion I consider ngly1.org secure.
Load time
0.813 seconds
SSL
SECURE
Internet Address
45.56.70.32

NAME SERVERS

ns1.linode.com
ns2.linode.com
ns3.linode.com
ns4.linode.com

BOOKMARK ICON

SERVER OPERATING SYSTEM

I discovered that this website is utilizing the Apache/2.4.18 (Ubuntu) operating system.

TITLE

NGLY1.org - N-Glycanase Deficiency - NGLY1

DESCRIPTION

Research, Awareness and Support for N-glycanase NGLY1 deficiency. Science for understanding, treating and curing NGLY1. NGLY1.org also provides diagnostic resources, library, patient registry, biobanks, support information, conferences, and more.

CONTENT

This domain ngly1.org has the following in the web page, "Protocol Collaboration at the NIH." Our analyzers observed that the website also stated " Protocol Collaboration with the NIH." The Website also stated " NGLY1org eliminates the challenges of N-glycanase deficiency. Through research, awareness, and support. Treatments and cures are Positively Possible. Make a difference in our childrens lives today. Learn more about this rare genetic disorder."

MORE WEBSITES

Angies Blog Just another WordPress.com weblog

Comment from Kendrick about my crazy day. Yes happy birthday to me. I guess you simply do not care. After meeting up with the guys today. I took the bus ride. Back to the bus stop from which i can walk back home. Perfect weather to clear my thoughts. I felt pathetic about myself. It actually felt like in dramas. It did not exactly apply to me.

Cest la vie

Sunday, October 12, 2014. Sunday, March 23, 2014. I would ask him to give me his toy and he hands it over. He still sleeps twice for 1. He drinks 6 ounces of milk every 4 hours. He is trying to stand and walk. He loves hanging out at the top of the stairs and calls us with his cute noises.

Lynnwood Gemeente - Lynnwood Gemeente

God ontluik die vlinder in jou. Lynnwood Gemeente op Sosiale Media. 2018 Created by NGL Admin. Teken in om te klets! .

New-age Gospel Lyrics - For all Gospel Songs, Hymns, Music Videos Lyrics

Christ is risen complete lyrics by James Tsong. My trust is in you by David G complete lyrics. I overcame by Ada complete lyrics.